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CLEAR Study Researcher Toolkit

Study Materials

Please click here for:

  • Data Access Policy

CLEAR Study data and biological specimens will be made available, subject to appropriate scientific and ethical approval, to any researcher or research group working on cancer.

A detailed Data Access Policy and Principles of Use will be available in early 2014. Please contact clearstudyenquiries@nswcc.org.au or call 02 9334 1869 if you require information urgently.

  • Application Forms

Please find application forms to request data or biological materials for CLEAR Study below. These documents are designed as templates to be completed in soft copy and emailed back.

If you have any questions about these forms please contact clearstudyenquiries@nswcc.org.au.

  • Costs for accessing Data and Biological Samples

The CLEAR resource has been built at significant cost by Cancer Council NSW, and the community of NSW which funds it. Consequently there are cost recovery fees for CLEAR Study data and biological samples, including an application fee.

Click CLEAR Study Cost Recovery Dec 2013 for a list of  charges.

  • Data Book and Data Dictionary

Click here for the CLEAR Study Preliminary Data Book Dec 2013. Please contact clearstudyenquiries@nswcc.org.au or call 02 9334 1869 for any enquiries.

Data has been prepared for release for  7,662 participants;  n= 5,896 cases and n= 1,766 controls. At December 1, 2013 major cancer types are as follows:

Breast

Bowel

Lung

Melanoma

Ovary

Prostate

Thyroid

Non Hodgkin’s Lymphoma

Male

7

440

114

223

0

975

28

85

Female

1504

338

129

233

124

0

117

93

Total

1511

778

243

456

124

975

145

178

    • Study Protocol

    Please contact us on clearstudyenquiries@nswcc.org.au for a copy of the study protocol.

  • Ethics and Research Governance
    • Application Process

The application process will be managed by the CLEAR Secretariat in conjunction with the Expert Advisory Committee.

  • Chief Investigators

Click here for details about the Chief Investigators.

  • Expert Advisory Committee

The Expert Advisory Committee, chaired by Professor Bernard Stewart, is responsible for scientific evaluation of requests for use of the resource.

  • Lead Ethics Committee

St Vincent’s Hospital (Sydney) is the lead Human Research Ethics Committee for the recruitment aspect of the CLEAR Study. Applications for any linked data are managed by the NSW Population Health Ethics Committee.

Applicants for CLEAR Study data or biological material should be guided by their institution as to the most appropriate Ethics Committee for their project, however applications must be submitted to NSW Population and Health Services Research Ethics Committee where there is a request for any linked data.

  • FAQs

See http://clearstudy.org.au/info-for-researchers/clear-study-faqs-for-researchers/ for FAQs for Researchers.

  • Contact Us

For any queries please contact us by email at clearstudyenquiries@nswcc.org.au or call CLEAR Study enquiries on 02 9334 1869.

 

10394COMPLETED Take the survey

1606

Number of people we need to participate to reach our current goal of 12,000

30%

partners also took the survey to help find causes of cancer. We need more!

Freddy SitasAssociate Professor Freddy Sitas

“Many people think the only way to help research is to give a financial donation, but when it comes to a broad reaching study such as CLEAR, we’re totally reliant on the courage and goodwill of cancer patients in the community.”

Karen CanfelAssociate Professor Karen Canfell

“We have an enormous diversity of lifestyles: we can compare and get meaningful answers about the causes of cancer”